Eye Problem (cystoid macular edema - CME) Need Some Background

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OTD posted on Sat, Feb 20 2010 2:17 PM

I'm T1, working into my 70th year (dx'd 10/06/1940).  About 18 months ago, I had a cataract removed and replaced with an implant.  Within two months, vision in that eye deteriorated.

I was referred to a retinal specialist, who restored the eye to 20/25 over a period of 6 months using drops and patience (Xibrom and a Predisone-based drop).  About 8 months later the problem returned.  The doc is reluctant to use the steroid (Prednisone-based) drops because of a sensitivity that developed during the previous treatment.  I'm not sure what the treatment options are.  That's where we are now.

I note in trying to get a handle on CME via the internet (the doc doesn't communicate too well - always in a hurry) that CME is often associated with T1 diabetes.  This leads to a question for this forum:

Have you dealt with CME?  What was your experience?  Can you point me to internet links that have been helpful in your understanding?  Thank you for your response!

I do not live in a real metropolitan area.  The doc managing this problem for me is a member of a small (5-10 retinal specialists) practice that serves several counties.  So changing docs could be difficult and not too pleasant.

I'm a member of Joslin's 50+ program and have been called back for additional study (not related to the eye).  I'm considering requesting a 'consult' or second opinion on the CME problem at the Joslin eye clinic at the same time.  Has anyone used Joslin in that way?  What was your experience?

I'll appreciate any experience you care to share.  Thank you!

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OTD replied on Sat, Feb 20 2010 2:19 PM

When my previous post showed, the title had been deleted.  So, for completeness, note that CME stands for Cystoid Macular Edema).  Sorry for any confusion.

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Ron AKA replied on Sat, Feb 20 2010 3:28 PM

Not sure if CME is different than Macular Edema caused by diabetic retinopathy. In any case I have no experience. Here is a page from the web site of the retina specialist that I see. Sounds like Macular Edema is treated with laser.

Retina Consultants

Ron

Not a med prof. Just diabetic type 2 on Prandin, Levemir, ramipril, bisoprolol, & Crestor. Diag. Feb/01.

"I have not failed. I have just found 10,000 ways that don't work." - Thomas Edison

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OTD replied on Sat, Feb 20 2010 3:54 PM

Ron, "cystoid" refers to small cysts that form in the macula.  I think that there are multiple causes; mine follows a cataract removal and lens implant.  Retinopathy is the formation of small blood vessels - the one thing this doc says is that I have no retinopathy Big Smile.

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Ron AKA replied on Sat, Feb 20 2010 6:10 PM

Another link to look at.

 

Ron

Not a med prof. Just diabetic type 2 on Prandin, Levemir, ramipril, bisoprolol, & Crestor. Diag. Feb/01.

"I have not failed. I have just found 10,000 ways that don't work." - Thomas Edison

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OTD replied on Sun, Feb 21 2010 10:49 AM

Ron,

I had actually seen that site a while back.  But I forgot just how succinct it is.  I'm still hoping to hear from someone who's been treated for CME at the Joslin eye center.  When I had the routine exam there as a part of the 50+ initial accessment, I was impressed by that place.  Most thorough exam I ever had!  I'm hoping they also have the widest experience with CME and can share some of that.

Thanks again Ron.

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jen1229 replied on Mon, Feb 22 2010 7:25 AM

I suggest that you go to the Joslin for a second opinion.  By law you are entitled to it. 

Jen  - LevemirConfused and Novalog Wink A1c 5.8

 

 

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