Macular Hole

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Julia Posted: Wed, Mar 31 2010 2:15 PM

This is the poster formerly known as Julie - I rejoined with a new account.

Macular hole is not really a complication of diabetes.  It is more a result of being in your 60's and myopic.  But I dveloped one, had a vitrectomy last Thursday, and I am now in my 7th day of keeping my face down, with 2 more to go until the surgeon takes a look.

It is pretty scary because I have no idea if the surgery worked.  I still see the hole in my vision, but it is a lighter color, so maybe that means something good happened. 

Just wanted to share my worries.  It is pretty lonely sitting here at home and looking down for all this time.

I hope you all are well.  I have missed conversing with you, but for a long time I couldn't figure out how to get in.  I shoud have tried a new account sooner.


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Nancy replied on Sat, May 29 2010 6:00 PM

Julia sorry to hear about your eye problems.  I also am very near sighted and have had issues with retinal tears. I have not had macular issues but am at high risk. So I hope things improve for you and your vision is restored. Nancy

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Julie_ replied on Sat, May 29 2010 6:43 PM


It is so nice to read your reply and know I have a friend here!

I went back to the retina surgeon for my 2-month checkback this week and he was ecstatic about how well the surgery went.  He said it doesn't get any better than the healing that I have according to his high-tech scanner machine.  Everything I read says that the macular hole surgery returns about 2 lines of eye chart vision and I gained 3 lines.  My corrected vision in that eye is now 20/50.  But he said the cataract is progressing - this is a common complication of a vitrectomy.  So that surgery will go on my calendar next.

I think you will relate to soemthing I heard the technician say as he was doing the scan.  He called me a "High-Myope."  For 30 years I have hated being called a "Diabetic."  Now I can add another adjective to my list of things I dislike being called!

Nancy, my advice for you is to get those regular retina specialist exams.  I had skipped one because I thought the cataract surgeon would let me know if I had a problem with my retina and I was seeing him every so often.  But then this macular hole got to be a stage 3 before I realized my vision was disappearing in that eye.  Maybe I caught it as fast as could be expected.  But I'll never know if going in to the doctor a little sooner could have helped things.


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Julie_ replied on Sat, May 29 2010 6:44 PM

Oh my goodness, my reply posted from my old account name!  Now I have a double identity!

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suneeti replied on Thu, Sep 2 2010 10:33 AM

you are in my prayers!

I have been a diabetic for more than 10 years withpretty good control. But at my last visit with an optholmologist (and he is new to me) he suddenly told me that my eye pressure is high (11.5 and 10) and prescribed Azopt dropw which are extremely expensive and not covered by my insurance. So I know how unnerving vision worries are. I do not know if I should see another doctor maybe at Joslin for a second opinion.

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donw replied on Thu, Sep 2 2010 8:43 PM

Julie or Julia, whichever name you are using today :-), I had the head down thing through five retina surgeries so I understand.  It really gets tough trying to drink a cup of coffee while facing the floor...thank God for straws.  Hope all comes out well.


"O Diem Praeclarum!"Big Smile

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Julia replied on Thu, Sep 2 2010 8:59 PM

Oh my goodness, Don!  5 times!  I was thinking that someday I might have to have a vitrectomy in my other eye, but I thought 2 times - one for each eye- would be the limit.  Boy, it was really the pits!

I rented the funny mirror so I could watch TV and walk the hallways of my high rise and go down the elevator to get my mail.  I also used it for seeing what was in the frig.  I had the funny device that you hang off the edge of the bed so you can put your face in the donut and keep your face down while you sleep.

The good news is that I was able to get new eyeglasses and I am now seeing 20/30 again!  I am seeing distance better than ever.  I still have little blind spots in my central vision, and according to my cataract surgeon, you never get everything back after a full thickness macular hole.  The retina surgeon, on the other hand, is an incurable optimist, and says he did a great job fixing me up good as new.

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Simi_Papa replied on Fri, Sep 3 2010 12:07 AM

My pressure has been above 15 in each eye for more than 5 years, 18 at my last checkup.  So far no problem with retinopathy or glaucoma.


"May the Force be with you!"

Diagnosed in 1997; Off all meds except Metformin!! Smile

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mari replied on Fri, Dec 28 2012 10:38 PM

just joined, what happen with fever and BS  newly diagnosed

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